Collaboration between ASF and CASS for expanded influence within the Angelman Syndrome community
Angelman Syndrome Foundation and ASF Canada Partner to Strengthen Support for Individuals with Angelman Syndrome
The Angelman Syndrome Foundation (ASF), based in Chicago, and the Canadian Angelman Syndrome Society (now known as ASF Canada) have joined forces to create a stronger network of support for individuals living with Angelman syndrome.
Kyle Rooney, president of ASF's board of directors, made the announcement, emphasising the strategic partnership's potential to serve the community better. ASF Canada, previously known as CASS, also anticipates expanding its network of clinics through this collaboration.
Amanda Moore, CEO of ASF, reiterated the shared philosophy and programming between the two organisations, with a primary focus on assisting and strengthening families affected by Angelman syndrome. Kelly Meissner, executive director of ASF Canada, expressed similar sentiments, committing to improving care and treatment options for individuals with Angelman syndrome.
The partnership comes at a time when the ASF is planning to add four more clinics to its existing network of 25 around the world. One of the new clinics this year is the Rush F.A.S.T. Center for Translational Research, located in Chicago.
Angelman syndrome is a genetic disease that can cause developmental delays, problems with speech and balance, and seizures. There is no known cure, but treatments can help manage some of the disease's symptoms. Living with Angelman syndrome can be challenging, as people with the disease may have difficulty sleeping and may need help with activities of daily living.
Both ASF and ASF Canada will remain separate organisations, each with its own board of directors and budget. However, they aim to use their networks and resources to help more people with Angelman syndrome. The foundations will continue to work tirelessly to support families from diagnosis to therapeutic treatments.
Over the years, ASF has given more than $15 million towards research for Angelman syndrome. This partnership is another step towards the organisations' collective goal of improving the lives of individuals with Angelman syndrome and their families.
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