Dealing with Bowel Incontinence in Our Loved One: Strategies for a Family's Assistance
In the world of special needs parenting, discussing incontinence is not a common topic. However, for one family, it has become a daily challenge they have learned to navigate with the help of a unique solution known as the Potty Protocol.
Juliana, a 13-year-old girl with Angelman syndrome, has faced gastrointestinal issues such as constipation and reflux, leading to frequent accidents. These incidents, often happening during the night due to her hyperactivity, can be emotionally and physically challenging.
The Potty Protocol was developed specifically to address the unique challenges associated with managing incontinence in children with Angelman syndrome. This innovative approach was instrumental in making cleanups more efficient and less emotionally taxing.
Last Saturday was one of those times when Juliana had an accident that required cleanup. The author, Juliana's parent, found themselves in a familiar situation, dealing with the aftermath of an accident that had occurred first thing in the morning, causing a challenge to the schedule.
The Potty Protocol involves the use of an oversized waterproof changing pad and disposable gloves. This setup helps to contain the mess and makes cleanups quicker and easier. The author often changes plans or takes breaks to cope with the challenges, finding comfort in conversations with other special needs parents about managing incontinence.
Juliana successfully sleeps in layers to keep her away from her pull-up, reducing the chances of accidents. However, even with these precautions, Juliana still puts out more than her adult-sized disposable underwear can handle in some instances, resulting in large bowel movements.
The incident occurred first thing in the morning, causing a challenge to the schedule. But with the Potty Protocol in place, the cleanup was managed effectively, and they were able to leave on time.
The Potty Protocol hangs next to a butterfly sign in Juliana's room, a constant reminder of the solution that has made life a little easier for the family. It is a testament to the resilience and determination required to handle the process of incontinence, a mental challenge as much as a physical one.
It is worth noting that Angelman syndrome is associated with high rates of incontinence in children. While the search results do not provide information about the author of a book describing the Potty Protocol by Juliana, the story serves as a powerful example of how parents can adapt and find solutions to the unique challenges their children face.
Incontinence may not be a topic typically discussed outside the company of special needs parents, but stories like Juliana's serve to bring awareness and understanding to this often overlooked aspect of life with a child with special needs.
Read also:
- Understanding Hemorrhagic Gastroenteritis: Key Facts
- Stopping Osteoporosis Treatment: Timeline Considerations
- Tobacco industry's suggested changes on a legislative modification are disregarded by health journalists
- Expanded Community Health Involvement by CK Birla Hospitals, Jaipur, Maintained Through Consistent Outreach Programs Across Rajasthan
