Improvement in angelic communication could be signaled by an unusual sound
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Steve Bryson, PhD, explores the sleep problems faced by parents of children with Angelman Syndrome in his latest article. The focus of the piece is on the unique case of 13-year-old Juliana, a nonverbal girl who uses an iPad as her augmentative and alternative communication (AAC) device.
Juliana, like many children with Angelman Syndrome, has experienced changes in her communication methods as she's grown older. While she used to wake up by crying or screaming as a toddler, she now starts her day with a loud "ugh" sound. This unusual wake-up call has left her guardian baffled, as it's unclear whether it's a regression or progression in her communication.
The "ugh" sound, which resembles the word "up," might be Juliana's way of communicating that she's awake. Interestingly, this sound can also be useful for songs and imitations for Juliana. However, it's worth noting that her guardian has tried to redirect her to knocking instead of using the "ugh" sound.
The goal in their journey with AAC is to help Juliana become more proficient as she grows older. To support Juliana's unusual communication method, her mother has tried various therapeutic approaches, including observation, empathetic communication, and likely integrative psychodynamic methods similar to mentalization-based therapy, which focus on improving social and emotional understanding in youths with social behavior disorders.
Sometime during the summer, Juliana's good morning knocks stopped. This has raised concerns about a potential sleep problem related to her "ugh" sound. The "ugh" sound also seems to build in volume if she doesn't get a response, which could indicate frustration or discomfort.
It's important to remind readers that the "ugh" sound might be considered a form of genius in communication for Juliana. However, always seek professional medical advice regarding a medical condition. Angelman Syndrome News is a news and information website, not a provider of medical advice, diagnosis, or treatment.
Subscribing to the Angelman Syndrome newsletter may provide additional insights and resources for parents facing similar challenges. The article serves as a reminder that while each case is unique, the community can offer support and understanding in navigating the complexities of raising a child with Angelman Syndrome.
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