Rallying collective efforts for International Angelman Day's recognition support
On February 15, the global community will come together to celebrate International Angelman Day (IAD). This annual event, first established in 2013 by two passionate parents of children with Angelman, serves as a powerful platform to raise awareness about this complex neurological disorder.
IAD aims to shed light on Angelman syndrome, a condition affecting approximately 500,000 individuals worldwide. The date of February 15 was chosen in recognition of the genetic defects associated with the condition, located on chromosome 15.
One of the key initiatives this year is the ASF Canada's Snow Angel Challenge. This campaign encourages participants to create a snow angel while wearing summer attire, share their creation on social media, and challenge others to do the same. The goal is to turn snow-covered landscapes into a canvas of compassion and support for IAD. ASF Canada is aiming to raise $10,000 through this challenge.
ASF Canada is also participating in the Light It Up Blue campaign, illuminating landmarks throughout Canada in blue. The organization responsible for the Canadian Light It Up Blue campaign is not explicitly identified in the search results.
In addition to these initiatives, the Foundation for Angelman Syndrome Therapeutics (FAST) is providing educational materials, videos, and social media resources for IAD. Participants can use the hashtags #IADFeb15 and #AngelmanSyndrome to join the conversation.
FAST has also introduced an Athlete 15-day challenge for IAD. This challenge encourages participants to engage in physical activities and share their progress.
The Snow Angel Challenge and the 15-day challenge are part of a broader effort to fundraise and support disease research. The Angelman Syndrome Foundation Canada (ASF Canada) has initiated the Snow Angel Challenge, asking for a minimum donation of $15 per participant.
IAD also serves as a memorial for those who have passed away from Angelman complications. Resources for IAD participants include social media profile frames, posters, logos, and customizable materials such as awareness posters, home yard signs, and awareness flyers.
Today, IAD includes more than 50 groups from over 40 countries. The event seeks to unite and mobilize Angelman families and organizations around a shared mission. With the collective efforts of these groups, IAD continues to make strides in raising awareness and support for those affected by Angelman syndrome.
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