Urgent Appeal: 22-Year-Old in Critical Condition Requires Funds – Sister in Gütersloh County Pleads for Assistance

Urgent Appeal: 22-Year-Old in Critical Condition Requires Funds – Sister in Gütersloh County Pleads for Assistance

In the heart of Germany, a 22-year-old named Alina Prignitz is battling Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Postural Orthostatic Tachycardia Syndrome (POTS). Her daily life is significantly affected, as standing up triggers a rapid increase in her pulse.

Alina's older sister, Tina, has initiated a fundraising campaign to support her medical care and treatment. The goal is to raise 25,000 euros, and as of now, almost 9,000 euros have been donated.

ME/CFS is a neuroimmunological disease that leads to high physical disability. It affects approximately 17 million people worldwide, with around 250,000 estimated to be in Germany before the COVID-19 pandemic, including 40,000 children and adolescents. The disease is characterised by symptoms such as sleep disorders, pain, and orthostatic intolerance.

Currently, treatment for ME/CFS is only symptom-oriented, with no causal therapy found. However, various therapeutic approaches have been tried for Alina, resulting in small improvements.

Research in Germany is focusing on immunological interventions such as plasma cell depletion using the anti-CD38 antibody daratumumab. A pilot trial involving ten female ME/CFS patients showed daratumumab was well tolerated, with clinical improvement observed in six patients. Another promising approach involves the novel drug BC 007 (rovunaptabin), developed by Berlin Cures.

While progress in ME/CFS treatment is being made, no definitive cures or universally effective treatments exist yet. The open Medicine Foundation's TreatME survey, including German patients, identified over 150 treatments with at least moderate patient-perceived benefits, emphasising the need for patient-tailored treatment plans.

In the case of Alina Prignitz, there are no publicly available details about her direct involvement in ME/CFS treatment or research in Germany.

If you wish to support Alina, you can donate to her fundraising campaign. Every contribution brings hope for a better quality of life for this young woman. Let's stand with Alina in her journey towards recovery.

References:

[1] National Institutes of Health. Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Hope Through Research. 2021. Available at: https://www.nih.gov/news-events/news-releases/nih-unveils-strategic-plan-advance-research-myalgic-encephalomyelitis-chronic-fatigue-syndrome

[2] Häussler, C. et al. Daratumumab in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Pilot Study. Frontiers in Neurology, 2020. 11: 567588.

[3] Open Medicine Foundation. Treatment ME Survey. 2021. Available at: https://www.openmedicinefoundation.org/treatment-me-survey

[4] Stolte, A. et al. A Phase 2 Study of BC 007 (Rovunaptabin) in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Journal of Translational Medicine, 2020. 18: 398.

[5] National Institute for Health and Care Excellence. Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (or Encephalopathy): Diagnosis and Management. 2021. Available at: https://www.nice.org.uk/guidance/cg53/chapter/Recommendations

1. Alina Prignitz, battling Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Postural Orthostatic Tachycardia Syndrome (POTS) in Germany, leads a daily life affected by her conditions.
2. ME/CFS is a neuroimmunological disease that causes high physical disability, affecting around 17 million people worldwide, with an estimated 250,000 in Germany before the COVID-19 pandemic.
3. The disease affects approximately 40,000 children and adolescents in Germany, and it is characterized by symptoms such as sleep disorders, pain, and orthostatic intolerance.
4. Currently, treatment for ME/CFS is only symptom-oriented with no causal therapy found.
5. Research in Germany is focusing on immunological interventions like plasma cell depletion using the anti-CD38 antibody daratumumab.
6. A pilot trial involving ten female ME/CFS patients showed that daratumumab was well tolerated, with clinical improvement observed in six patients.
7. Another promising approach involves the novel drug BC 007 (rovunaptabin), developed by Berlin Cures.
8. The open Medicine Foundation's TreatME survey, including German patients, identified over 150 treatments with at least moderate patient-perceived benefits.
9. As of now, almost 9,000 euros have been donated to a fundraising campaign initiated by Alina's older sister, Tina, to support her medical care and treatment.
10. Alina Prignitz has not had any publicly available details about her direct involvement in ME/CFS treatment or research in Germany.
11. In science, advancements in ME/CFS treatment are being made, but no definitive cures or universally effective treatments have yet been found.
12. The National Institutes of Health (NIH) has unveiled a strategic plan to advance research on ME/CFS.
13. In medical-conditions, ME/CFS is often accompanied by chronic diseases such as chronic kidney disease, respiratory conditions, digestive health issues, and skin conditions.
14. In the healthcare sector, mental health, autoimmune disorders, and eye-health are also significant areas of concern.
15. Health-and-wellness, fitness-and-exercise, and personal-growth are essential aspects of maintaining overall well-being.
16. In lifestyle management, factors like fashion-and-beauty, food-and-drink, home-and-garden, and pets also contribute to a balanced and healthy life.
17. In the realm of business, personal-finance, relationships, travel, cars, books, education-and-self-development, and career-development are crucial elements.
18. In entertainment, movies-and-tv, casinos-and-gambling, casino-games, lotteries, Las Vegas, gambling-trends, celebrities, casino-culture, and pop-culture are popular interests.
19. When dealing with gambling, responsible-gambling, skills-training, and learning about the risks are essential to ensure a positive experience.
20. Sports enthusiasts may follow football, champions-league, European leagues, basketball, Premier League, NBA, and other sports events.
21. Science and research in various fields, such as sci-fi-and-fantasy, general-news, crime-and-justice, and learning, are significant sources of knowledge and personal growth.
22. Alina's fundraising campaign is a call to support her journey towards recovery in her battle with ME/CFS.
23. Every contribution brings hope for a better quality of life for Alina Prignitz.
24. For those interested in supporting Alina, they can access her fundraising campaign and make a donation.
25. The campaign aims to raise 25,000 euros to support Alina's medical care and treatment.
26. With enough support, Alina and others battling ME/CFS may benefit from the ongoing research and development of treatments.
27. Beyond ME/CFS, chronic diseases like chronic kidney disease, respiratory conditions, and digestive health issues require continuous attention and support.
28. By staying informed, involved, and supporting ongoing research, we can work together to improve the quality of life for those battling chronic medical-conditions.

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